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| Helpful Links |
Links To Chiari And Related Disorders Organizations and Support Groups
Note: In A Effort To Gain Worldwide Assistance And General Awarness Some Websites Are Not Written In English
For A Translation Visit:
Google Translation---Translate Websites To Other Languages
1. Chiari & Syringomyelia Foundation, Inc. (CSF)
Dedicated to education and awareness within the local and world community. CSF also offers parent advocacy and strives
to raise funds to benefit research.
2. Conquer Chiari
Fact-filled site presenting education through articles, written interviews, personal stories, research updates, news and
information.
3. American Syringomyelia Alliance Project
Educational and supportive site featuring medical articles, message board, information for professionals and more, all
with an emphasis on advocacy and research funding.
4. The Ann Conroy Trust
Support and information to assist sufferers of Syringomyelia, Arnold Chiari Malformation and associated disorders.
Fundraising efforts assist research in the UK, and the site hosts information and a "hotline," as well.
5. AFACPA
AFACPA (Association of relatives and those affected with chiari and associated pathologies) The objective of this Spanish
site is to educate sufferers and their families about Arnold Chiari Malformation. AFACPA relies upon the participation of
professionals in this specialized field for the information they provide.
6. Assocazione Italiana Siringomielia e Arnold Chiari (AISMAC)
The objective of AISMAC is to support the patients of these pathologies and to offer through the web site updated
medico-scientific information, news, educational support, patients rights and national and international links.
7. http://www.apaiser.asso.fr/cgi-bin/index.php
This French site for the organization, APAISER (APPEASE) offers European sufferers of syringomyelia a place to find
links, medical articles, information and support.
8. World Arnold Chiari Malformation Association
Online support group as well as an informative website about Chiari
Links To Helpful Links To Other Organizations And Websites
1. American Society of Neurosurgeons Fact Sheet
2. Basilar Invagination
3. Chiari I/II/II--MRI's of different types of chiari
4. Chiari Connection Parents--Kids with CM1, associated disorders and support
5. Chiari info UK--UK support and info
6. Collaborative
hypertext of Radiology/U of Wisconsin--Information and MRI images of CM1
7. Doctor ratings--rate your doctor, find info on a doctor
8. Ehlers-Danlos Syndrome--Information is good here, but some require payment
9. Health Insurance Information
10. Hyman-Newman Neurology and Neurosurgery of NY
11. Independent Living
12. Italian CM/SM website
13. Medical illustrations from Netter Images
14. The Chiari Institute
15. National Institute of Health--Chiari
16. Pain scale
17. Pediatric Neurosurgery
18. University of Virginia Health System--General information about CM1
19. Urodynamics Testing--Explains What The Test Is Like
20. Flight Assistance
21. Laminectomy--Picture of Laminectomy (Cervical)
22. Dr. Oro--Website
23. Useful Link For Those Traveling To And From Home For Medical Care
24. Lynxcare--Medical Record Summary, Consulting Services, Medication Review and Analysis, and Reminders
25. Chiari One--Information On Chiari One
26. Example of Urodynamics Study
27. Ronald McDonald House of Long Island
28. Anatomy of the Brain
29. Wishes and Rainbows
30. Head Coverings/Scarves/Hats for Post Surgery Wear
31. Miracle Wish For Chiari
32. Web MD---Chiari
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