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| Regional Support/Information Groups |
Below Are Regional Support/Information Groups. Some Are Online Groups and Others Are "Offline" Groups That
Meet Locally
"Offline" Support Groups:
Airzona Syringo Chiari Care & Support Group
Meets the 3rd Thursday of every quarter
Time: 11:00 - 1:00
Location: St. Joseph's Outpatient Rehab Center - 114 W. Thomas Rd
Our quarterly meeting includes time to visit & share before a planned speaker. We encourage friendship, lunch,
movies or just coffee during the other months.
For additional information, email us: Contact Us
Northeast Chiari Friends
Meets in: Kingston, NY, East Greenbush/Albany, NY, Pittsfield, MA, and Canaan, CT.
You can contact Jodie for more information by using one of the following emails:
churchill@fairpoint.net or:
northeastchiarisupport@hotmail.com
Chiari & Syringomyelia Support of the Greater Lehigh Valley
Meets on the first Sunday of every month, 2:PM, in the Banko Bldg. of Lehigh Valley Hospital/Muhlenberg campus.
They also have meetings scheduled on the following Wednesday evenings: 7- 9: PM:
For more information please contact one of the following people:
Sally Reusser: Contact Me
or Denise Siegfried: Contact Me
The Southeast CM/SM Support Group
Meets in Columbus, Georgia
For more information contact Pam Holmes: Contact Me
Chiari Pen Pals
My name is Jodie, Chiari Pen Pals is starting a pen pal group. It will be for all ages 18 and older. This is not
related to Chiari Connection International. If you are interested you can email your name, home address,email address,
age, male/female, to: Contact Me
Chiari People of Pennsylvania Support Group
"Chiarians helping one another with support and fundraising."
Place: The Children's Clinic of Wyomissing, 2240 Ridgewood Road, Suite 100, Wyomissing, PA 19610
Date: Every Third Monday of each Month
Time: 6:30 PM to 8:00 PM
Contacts:
Renee Tobias: Contact Me
Missie Ruth: Contact Me
Online Support Groups
Chiari-Pacific-Northwest-USA
Website:
Chiari-Pacific-Northwest-USA
Upstate NY Chiarians
Website:
Upstate NY Chiarians
Maryland Chiari Support
Website:
Maryland Chiari Support Group
North Carolina Chiari Support
Website:
North Carolina Chiari Support Group
ACM/EDS/TCS "Trifecta Group"
Website:
ACM/EDS/TCS "Trifecta Group"
Pseudotumor Cerebri
Website:
Pseudotumor Cerebri Group
Hydrocephalus Support "HYCEPH-L Listserv"
Website:
Hydrocephalus Support Group "HYCEPH-L Listserv"
ACM Hampton Roads
Website:
ACM Hampton Roads
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